Martine Pergent

Transform alliance - IPOPI

Martine Pergent is a member of Transform Alliance steering committee. She is a dedicated volunteer patient advocate representing people with primary immune deficiencies (PIDs) worldwide. She has extensive experience in patient rights advocacy, global health initiatives, and fostering collaboration between patient organisations, healthcare professionals, and policymakers. Since October 2018, she has served as President of IPOPI (International Primary Immunodeficiency Patient Organisation), where she works to enhance access to early diagnosis, personalised treatments, and innovative healthcare solutions, including advanced therapies.
Her expertise includes establishing new patient organisations, particularly in low- and middle-income countries, and promoting advancements in medical and social sciences, innovative treatments, artificial intelligence, and health data collection, including PROMs and PREMs. She is actively engaged in international networks, ensuring patient representation in key medical and research initiatives.

She promotes patient participation in any project that concerns them. Martine believes that cooperation with all the players in the healthcare ecosystem, first and foremost physicians and healthcare professionals, is essential.